I feel so grateful to be alive !!!

  


I have ALS and I feel blessed !!! My condition is progressing very slowly. I have already lived a lot longer than anyone thought I would. My symptoms started over 20 years ago... I turned 62  this year and I feel great !!! I am writing my Bio titled "Living with ALS" and you can read it  here online free what I've written so far, this work in progress !!!

I can't speak, i use 5 computers, a Toshiba laptop, an ipod touch 5G, a Mini Ipad ( my preferred  device ), Google Nexus 7 tablet PC and a Dynavox , they speak for me. The Dynavox is a touch screen computer with windows 10,   wifi internet, and amazing communication software that speaks for me. It also has a feature, an eyegaze, that allows me to use the computer, with my eyes, if and when I need it. It attaches to my wheelchair. (Really, it's just taking up space, because I prefer to us e my mini iPad) 

I still walk a short distance, with a walker, leg braces, 3 times a week, 15  yards or so. I need help dressing, in and out of bed, showering...

I am very happy...

I have an electric wheelchair, 32 in flatscreen TV, with a DVD Player built in, I Stream Netflix with my tablet, and mini iPad  (which I use most often, I'm updating this page on this, in bed , late at night)
Spotify with all kinds of music. So I have all I need to be happy.... I have lots of good help.. I live in a very nice health care center, were I'm well cared for, which frees the burden on friends and family, been here over 14 years...

You can find me on Facebook most of the time playing poker and other games... Please feel free to friend me...

Follow me on Twitter.    @MikeRayl  @MetaRoc   @ClubUrantia  @RaylWebDesign ...   Please visit my MetaRoc logo store or Club Urantia logo store designed by me... tee shirts hats ect... 

 
Join our email list to keep up to date with this site, we will not give, sell, share your information with anyone. click contact us or message me on  Facebook  @MetarRoc same for twitter !!! 


 Please help me by donating  to my cause, I have made it easy, just click the button below...

I only get to keep  $35 a month, the rest goes to my stay here  !!!  But it's worth it, total good care...

But I do depend on generous people like You !!! To help with Quality of Life  incidentals ... Thanks for your generous support !!!


 
About Lou Gehrig's Disease

Amyotrophic lateral sclerosis (ALS) -- widely known as Lou Gehrig's disease -- causes degeneration of the nerve cells in certain regions of the brain and spinal cord that control the voluntary muscles. Eventually, people who has ALS lose the ability to move their limbs and the muscles needed to breathe.

The causes of the disease remain elusive. Although the progression of ALS cannot be reversed, advances in treatment have meant that many who have the disease are living longer. Each year about 5,000 Americans are newly diagnosed with ALS, and about 20,000 Americans have the disease.

ALS first gained widespread public attention in the United States in 1939, when it ended the career of Hall of Fame baseball player Lou Gehrig of the New York Yankees. Mr. Gehrig's disease was diagnosed at Mayo
Clinic